Methods: Outcomes of JIA patients prospectively followed by the Biologika in der Kinderrheumatologie (BiKeR) and Juvenile Arthritis Methotrexate/Biologics Long-Term Observation (JuMBO) registers were analyzed with regard to . RKU - Universitäts- und Rehabilitationskliniken Ulm gGmbH, Kliniken der Kreisspitalstiftung - Donauklinik Neu-Ulm, Kliniken der Kreisspitalstiftung - Stiftungsklinik Weißenhorn, Kreiskrankenhaus Blaubeuren im Gesundheitszentrum Blaubeuren Krankenhaus GmbH Alb-Donau-Kreis, Kreiskrankenhaus Langenau im Gesundheitszentrum Langenau Krankenhaus GmbH Alb-Donau-Kreis, .st0{fill:#0a95cd;} Share this article. In Neu-Ulm offeriert die erstklassige Ingmar Janke e.U. so gelang bereits die Erstbeschreibung mehrerer Gendefekte. J Rheumatol. Google Scholar. 2010;37(9):1953–61. © 2023 BioMed Central Ltd unless otherwise stated. univ. Leitung: Dr. Güloglu) zusammen, um durch Bündelung bestehender Kompetenzen die medizinische Versorgung zu übernehmen. Wenn Sie über Kolibrie einen Termin für die Abklärung einer Immunschwäche oder einer rheumatologischen Erkrankung verabreden möchten, brauchen wir von Ihnen zuvor Informationen. The publication fees were supported by the Initiative für das rheumakranke Kind (www.irkk.de), a non-for profit organization advocating for improved well-being of children with rheumatic diseases and their families, and a directed donation by the U can ride for arthritis (http://www.ucanr4a.eu/en/bicycle/) initiative. FS and PO developed the online survey and revised the manuscript critically. Dr. Hinze has received consulting fees, speaking fees, and/or honoraria from Novartis (less than $10,000 each). J Rheumatol. Unsere Praxis. 2011;70(12):2089–94. Kim S, El-Hallak M, Dedeoglu F, Zurakowski D, Fuhlbrigge RC, Sundel RP. Edition Number 3. ole­sia.hinka@uniklinik- ulm.de. More specific patterns on frequency and tapering were defined regarding both IVMP therapy and high-dose oral glucocorticoid therapy. Sie suchen Rheumatologen in Ulm? Kindliches Rheuma ist wenigen Menschen bekannt, dabei sind in Deutschland etwa 20.000 Kinder und Jugendliche davon betroffen. Typical skin changes, proximal muscle weakness, typical MRI findings and elevated muscle enzymes were deemed to be most the important features (Fig. Ihr Eintrag, aufklappen Of the 60 GKJR members, 57 (85%) were practicing pediatric rheumatologists, and 3 (4%) were either fellows in pediatric rheumatology or general pediatricians with a special interest in JDM. Eine enge Kooperation besteht mit Augenärzten/innen und Hautärzten/innen, welche auf immunologische und autoimmunologische Erkrankungen spezialisiert sind. Kinderrheumatologie.de belongs to Strato AG. An jedem Ort. Pediatr Rheumatol 16, 38 (2018). 2016;68(11):2806–16. Rider LG, Shah M, Mamyrova G, Huber AM, Rice MM, Targoff IN, Miller FW. opted to develop a survey consisting of 5 case scenarios (23 questions) with the option to extend the survey for an additional case scenario addressing the issue of dystrophic calcification (9 questions). Notrufnummern, aufklappen Der Dienstleister RIW Arzt für Dermatologie in Neu-Ulm, bietet das nötige Know How um dem Kunden spezielle Wünsche wie Kinderallergologie als auch Kinderdermatologie bieten zu können. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated. There is consensus about the diagnosis of JDM strongly supported by classic clinical and MRI findings. : 0731 - 500 57275. Anyone you share the following link with will be able to read this content: Sorry, a shareable link is not currently available for this article. Wir sorgen dafür, dass Ihr Unternehmen in allen wichtigen Online-Verzeichnissen gefunden wird. Consensus-based recommendations for the management of juvenile dermatomyositis. The myositis autoantibody phenotypes of the juvenile idiopathic inflammatory myopathies. Fifty-eight participants (87%) were currently managing JDM patients. Kinder-Rheumatologie. All authors read and approved the final manuscript. Consensus treatments for moderate juvenile dermatomyositis: beyond the first two months. The majority of participants were familiar with several disease activity measures, including the CMAS (91%), the physician global score (87%), the childhood health assessment questionnaire (C-HAQ) (79%), the patient/parent global score (76%), and the disease activity score (DAS) (70%). Jede Spende hilft uns, das Wissen über immunologische und rheumatologische Erkrankungen zu erweitern und die betroffenen Kinder und Jugendlichen umfassend zu begleiten. On a Likert scale of 1 to 5, 1 indicating strong support and 5 strong rejection, the most preferred therapies in ongoing refractory moderate JDM were IVIG, MMF and RTX (Fig. PubMed  Pediatr Rheumatol Online J. Huppertz HI, Frosch M, Kuhn C, Christen HJ. Intravenous cyclophosphamide pulse therapy in juvenile dermatomyositis. In unserem Kompetenzentrum wird den Patienten/innen vom säuglings- bis ins jugendlichen Alter ein umfassendes interdisziplinäres Betreuungskonzept durch Fachärzte/innen angeboten: angefangen bei der Diagnostik, hin zu individualisierten Therapiekonzepten bis zur Transition in die Erwachsenenmedizin. Juvenile dermatomyositis and other idiopathic inflammatory myopathies of childhood. Ultraschalldiagnostik in der Kinderrheumatologie. with a two-and-a-half-fold higher chance to achieve the primary outcome [36]. pulmonary function testing), and consultation of other subspecialities (Table 1). (A) Preferred time point of initial glucocorticoid taper also in regards to the presence or absence of improvement, (B) usual interval for glucocorticoid taper, (C) preferred time point for reaching moderate-dose levels, (D) preferred time point for reaching low-dose levels and (E) preferred time point for discontinuation of glucocorticoid therapy. Leider keine Personen zu Kinder-Rheumatologie in Ulm vorhanden. 2014;73(6):1083–90. 2011;50(1):137–45. Sixteen % opted for not starting any cDMARD if there was a good response to glucocorticoid therapy. 2a). It was estimated that a survey designed to take 30–45 min to complete would be acceptable to participants in the survey. Praxisinformation u-kidz Zentrum für Kinder- und Jugendmedizin - Dr. Regina Gaissmaier, Dr. Sabine Voßbeck, Dr. med. Wenn Sie sich nicht sicher sind, ob die jeweilige Firma Ihnen weiterhelfen kann, dann rufen Sie einfach an: Die Telefonnummer, sowie häufig auch eine "Gratis anrufen"-Funktion ist Ihr direkter Draht zum Brancheneintrag für Kinder-Rheumatologie in Ulm. Cardiac findings in children with juvenile dermatomyositis at disease presentation. Viele Einträge sind bereits von Kinder-Rheumatologie-Kunden in Ulm bewertet worden: Die Kommentare helfen Ihnen sicherlich bei der Auswahl der richtigen Adresse. Daniel Windschall, Clara Malattia, Manuela Krumrey-Langkammerer and Ralf Trauzeddel. The survey specifically addressed (1) initial diagnostic measures taken in a patient with probable JDM, making the diagnosis of moderate JDM and initial treatment steps (10 questions), (2) maintenance treatment in patients with moderate JDM (6 questions), (3) treatment of refractory moderate JDM (3 questions), (4) treatment of glucocorticoid-dependent moderate JDM (1 question), (5) initial treatment of severe JDM and treatment of refractory severe JDM (3 questions), and, optionally, (6) management of dystrophic calcification (9 questions) (Additional file 1). Regarding the management of refractory moderate or severe JDM, intravenous immune globulins, mycophenolate mofetil and rituximab were preferred treatment options. Ruperto N, Pistorio A, Oliveira S, Zulian F, Cuttica R, Ravelli A, Fischbach M, Magnusson B, Sterba G, Avcin T, et al. In order to develop consensus-based treatment strategies for JDM in Germany a survey was pursued to analyze the current clinical practice. Arthritis Rheum. Falls das Feld auf der Überweisung nicht ausreicht bitte die Daten per Mail an lara.braun@uniklinik-ulm.de schicken. All authors are part of the PRO-KIND JDM project group, participated in phone conferences and online surveys, and revised the manuscript critically. The part of the survey addressing the management of dystrophic calcification eventually was excluded from this manuscript because of the lower number of participants (n = 49) in that part of the survey. Therapeutic approaches in the treatment of juvenile dermatomyositis in patients with recent-onset disease and in those experiencing disease flare: an international multicenter PRINTO study. Anmel­dung (Ter­mine nach Ver­ein­ba­rung) Mi 08.30 - 12.00 Uhr. The survey was completed by 60 pediatric rheumatologists and 7 pediatric neurologists experienced in the management of JDM. ruling out mimicking infections), autoantibodies (e.g. Failure of pulse intravenous methylprednisolone treatment in juvenile dermatomyositis. Efficacy of intravenous Ig therapy in juvenile dermatomyositis. The REFRESH value is set to 43200 seconds, RETRY is set to 5400 seconds, EXPIRE is set to 604800 seconds, and MINIMUM TTL is set to 86400 seconds. Series ISSN 2625-3461. Tel. Regarding induction treatment of moderate/severe JDM: 59%/74% opted for intermittent intravenous methylprednisolone (IVMP) pulse therapy, and 21%/40% for conventional high-dose oral glucocorticoids. Most experts feel that the demonstration of typical MRI findings should become a valid criterion in the diagnosis of JDM, which is in keeping with other reports [5, 11, 12]. Jetzt Fachabteilungen vergleichen und optimale Arztstellen finden. Hinweis des Verlags. Current management of juvenile dermatomyositis in Germany and Austria: an online survey of pediatric rheumatologists and pediatric neurologists, https://doi.org/10.1186/s12969-018-0256-7, https://doi.org/10.1186/s12969-017-0174-0, http://creativecommons.org/licenses/by/4.0/, http://creativecommons.org/publicdomain/zero/1.0/. Journal: Aktuelle Rheumatologie, 2022, Volume 47, Number 02, Page 128 DOI: 10.1055/a-1737-3245 This item cites DOI: 10.1007/978-3-030-17824-6_18 Read Online Diese Website verwendet Cookies. Tele­fon: 0731 500-44070. 91 - 89073 Ulm Das sind einerseits für den Betrieb der Seite notwendige Cookies, andererseits solche, die für Statistikzwecke, für die Anzeige von Posts aus sozialen Netzwerken oder bei der Anzeige von Kartenmaterial gesetzt werden. Email: kin­der.ambu­lanz @ uniklinik- ulm.de. Request PDF | Ultraschalldiagnostik in der Kinderrheumatologie | Zusammenfassung Der Artikel gibt einen Überblick zum aktuellen Stand der Ultraschallbefundung in der Kinderrheumatologie und geht . Kinder-Rheumatologie in Ulm gesucht? The findings deduced from these analyses will be required for the development of consensus-based treatment strategies in Germany. Walter Uray, Dr. Melanie Schlegel, Dr. Christoph Kupferschmid Detailsuche. Oddis CV, Reed AM, Aggarwal R, Rider LG, Ascherman DP, Levesque MC, Barohn RJ, Feldman BM, Harris-Love MO, Koontz DC, et al. All data generated or analyzed during this study are included in this article. Arthritis Rheum. The following diagnostics were suggested by at least 75% of participants: Erythrocyte sedimentation rate, glutamate oxaloacetate transaminase (GOT)/aspartate aminotransferase (AST), glutamate pyruvate transaminase (GPT)/alanine aminotransferase (ALT), creatine kinase (CK), lactate dehydrogenase (LDH), antinuclear antibodies (ANA), complete blood count (CBC) with differential count, C-reactive protein (CRP), urea, creatinine, immune globulin (Ig) G/IgA/IgM, electrocardiography (ECG), pulmonary function testing, echocardiography and muscle magnetic resonance imaging (MRI). Number of Pages XVIII, 1010. AJR Am J Roentgenol. 1996;128(3):429–32. Provided by the Springer Nature SharedIt content-sharing initiative. Laxer RM, Stein LD, Petty RE. Topics Pediatrics, Internal Medicine, Rheumatology, General Practice and Family Medicine, Orthopaedics. zuklappen Gründung des Kompetenzzentrums "Kolibrie", Erfolgreiche Behandlung von seltenen Immundefekten bei Säuglingen. Ethimedis.de. J Pediatr. In moderate JDM, 79% opted for starting conventional disease-modifying antirheumatic drug (cDMARD) therapy immediately or within less than 4 weeks after overall initiation of therapy, whereas 4% opted for starting after 8 weeks and 2% for starting after 12 weeks of therapy. Malattia C, Damasio MB, Madeo A, Pistorio A, Providenti A, Pederzoli S, Viola S, Buoncompagni A, Mattiuz C, Beltramo A, et al. Hochqualifizierte Fachärzte aus den Bereichen internistische Endokrinologie und Diabetologie, pädiatrische Endokrinologie, gynäkologische Endokrinologie und Pränataldiagnostik arbeiten hier eng zusammen. By using this website, you agree to our Walter Uray, Dr. Melanie Schlegel, Dr. Christoph . Kinderarztpraxis Oberingelheim Am Markt 6 55218 Ingelheim. Article. According to our survey, there is also a strong preference for IVIG as a second-line treatment option in patients with refractory or severe JDM, with MMF and RTX both being preferred options. Arthritis Care Res (Hoboken). Inhalte der Kli­nik. Results of the second childhood arthritis and rheumatology research alliance consensus conference. increasing disease activity upon glucocorticoid tapering, 53% suggested an additional therapy, 20% a switch in therapy and 27% a re-intensification of the current therapy. Article  Substantial variability and controversy was identified regarding the treatment of JDM patients with a refractory or severe course of disease. A link to the survey was sent out to the pediatric rheumatologists on February 2, 2016, and a link was posted on the Society for Pediatric Neurology’s website on February 15, 2016. Impressum . Schwartz T, Sanner H, Husebye T, Flato B, Sjaastad I. Cardiac dysfunction in juvenile dermatomyositis: a case-control study. The Bohan-Peter diagnostic criteria for dermatomyositis (DM) exist for more than 40 years, and those criteria are also often used to diagnose JDM [4]. Walter Uray, Dr. Melanie Schlegel, Dr . A review of efficacy and safety. Jetzt Fachabteilungen vergleichen und optimale Arztstellen finden.. N Engl J Med. An online survey addressing all members of the Society for Pediatric Rheumatology (GKJR) in Germany and Austria and pediatric neurologists with expertise in JDM was performed in February/March of 2016. Kostenlose Infos zu Öffnungszeiten Telefonnummern bei Ihrer Nr. zuklappen Rouster-Stevens KA, Morgan GA, Wang D, Pachman LM. 2b). Muscle biopsy findings in combination with myositis-specific autoantibodies aid prediction of outcomes in juvenile dermatomyositis. It reaches roughly 30 users and delivers about 30 pageviews each month. Juvenile dermatomyositis. Get Rheumatologie Ulm's information like Emails, Groupe Bpce email format, Phone Number, Competitors | Get Rheumatologie Ulm.com information like Emails, Groupe Bpce email format, Phone Number, Competitors Kontakt Trotz moderner Therapien nehmen etwa 50% der Patienten/innen mit entzündlich-rheumatischen Erkrankungen eine Funktionseinschränkung mit ins Erwachsenenalter. Ann Rheum Dis. Tel. Die interdisziplinäre Versorgung im stationären Bereich mit anderen pädiatrischen und nicht-pädiatrischen Kollegen/innen ist bereits umgesetzt. This is also reflected by current clinical practice in Germany as evidenced by this survey, similar to what has been reported in North America [6]. Anschrift: Eyth­straße 24. Article  Google Scholar. The last verification results, performed on (October 31, 2022) kinderrheumatologie.de show that kinderrheumatologie.de has an invalid SSL certificate. Pediatr Rheumatol. Brown VE, Pilkington CA, Feldman BM, Davidson JE. Rheumatology (Oxford). Lancet. and P.O. Hautarzt in Ulm bietet das nötige Know How als Kinderallergologe oder Kinderhautklinik, um dem Kunden Wünsche wie allergische Hautreaktionen behandeln zu erfüllen. 2006;45(8):990–3. Polymyositis and dermatomyositis (first of two parts). Article  2011;63(10):3142–52. Rheumatology (Oxford). : 0731-500 57330. Clinical features, pathogenesis and treatment of juvenile and adult dermatomyositis. A reminder e-mail was sent out to pediatric rheumatologists who had not opened the survey two weeks prior to closing the survey. Angebotsservice, aufklappen Treatment approaches to juvenile dermatomyositis (JDM) across North America: the childhood arthritis and rheumatology research alliance (CARRA) JDM treatment survey. Anmel­de­for­mu­lar Endo­kri­no­lo­gi­sche Ambu­lanz für Ärzte. Current management of juvenile dermatomyositis in Germany and Austria: an online survey of pediatric rheumatologists and pediatric neurologists. Ist der Kunde auf der Suche nach einem Dienstleister,der als Kinderallergologe und Kinderhautklinik tätig ist, dann kann Hendrik Radtke in Neu-Ulm weiterhelfen.

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